Read about the journey that ended my 20 years of suffering with Tietze's Syndrome »Helping Your Child Deal With Chronic Illness
Filed under: Tips for Dealing With Chronic Illness | 2 Comments »I just wrote an article on my other blog, about how to help children deal with chronic illness (and how to help other adults understand as well!). The message is universal, and is just as applicable for Tietze’s syndrome as it is for reactive hypoglycemia (which is what my ten-year-old son has). You can find the full article at the Reactive Hypoglycemia website.
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Tietze's Syndrome
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I can remember back to when I was little (can’t remember what age) and coming in from playing outside and telling my mom that “my heart hurts”.
I went for several years not ever really having any pains. Then after I lost around 60 pounds, I started having the chest pains again, only worse then ever.
They were literally debilitating! I would be flat out. Twisting, curling up into a ball, hot, sweating, crying, taking only very short/shallow breaths because it hurt so bad that I couldn’t breath. I would be extremely nauseated, and after about 15 minutes, the pain would slowly go away, and I would pass out for about 2 to 3 hours. After which I would still be left exhausted but better.
My doctor only gave me an ultrasound of my gallbladder and when that came back nothing, she said she didn’t know. DIDNT KNOW!!
Well I need to know! Everytime I have one of these “episodes” I worry if it is a heart attack or if these are my last moments. I am scared.
Jessica,
Have you seen a cardiologist and/or a rheumatologist? If not–you should go, because knowing what you have is 90% of the treatment (at least, I felt a whole lot better knowing it wasn’t my heart!).
Stephanie