http://www.tietzessyndrome.com/articles/helping-your-child-deal-with-chronic-illness/ A Blog About How to Manage and Defeat the Disease Thu, 14 Jan 2010 00:37:27 +0000 hourly 1 http://wordpress.org/?v=3.0.1 http://www.tietzessyndrome.com/articles/helping-your-child-deal-with-chronic-illness/comment-page-1/#comment-266 Steph Kenrose Thu, 08 Oct 2009 07:48:46 +0000 http://www.tietzessyndrome.com/?p=238#comment-266 Jessica, Have you seen a cardiologist and/or a rheumatologist? If not--you should go, because knowing what you have is 90% of the treatment (at least, I felt a whole lot better knowing it wasn't my heart!). Stephanie Jessica,
Have you seen a cardiologist and/or a rheumatologist? If not–you should go, because knowing what you have is 90% of the treatment (at least, I felt a whole lot better knowing it wasn’t my heart!).
Stephanie

]]> http://www.tietzessyndrome.com/articles/helping-your-child-deal-with-chronic-illness/comment-page-1/#comment-249 Jessica Sun, 04 Oct 2009 05:33:30 +0000 http://www.tietzessyndrome.com/?p=238#comment-249 I can remember back to when I was little (can't remember what age) and coming in from playing outside and telling my mom that "my heart hurts". I went for several years not ever really having any pains. Then after I lost around 60 pounds, I started having the chest pains again, only worse then ever. They were literally debilitating! I would be flat out. Twisting, curling up into a ball, hot, sweating, crying, taking only very short/shallow breaths because it hurt so bad that I couldn't breath. I would be extremely nauseated, and after about 15 minutes, the pain would slowly go away, and I would pass out for about 2 to 3 hours. After which I would still be left exhausted but better. My doctor only gave me an ultrasound of my gallbladder and when that came back nothing, she said she didn't know. DIDNT KNOW!! Well I need to know! Everytime I have one of these "episodes" I worry if it is a heart attack or if these are my last moments. I am scared. I can remember back to when I was little (can’t remember what age) and coming in from playing outside and telling my mom that “my heart hurts”.
I went for several years not ever really having any pains. Then after I lost around 60 pounds, I started having the chest pains again, only worse then ever.
They were literally debilitating! I would be flat out. Twisting, curling up into a ball, hot, sweating, crying, taking only very short/shallow breaths because it hurt so bad that I couldn’t breath. I would be extremely nauseated, and after about 15 minutes, the pain would slowly go away, and I would pass out for about 2 to 3 hours. After which I would still be left exhausted but better.
My doctor only gave me an ultrasound of my gallbladder and when that came back nothing, she said she didn’t know. DIDNT KNOW!!
Well I need to know! Everytime I have one of these “episodes” I worry if it is a heart attack or if these are my last moments. I am scared.

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