Comments on: Tietze’s Syndrome: A Disease by Any Other Name

By: Steph Kenrose

Steph Kenrose — Sun, 13 Sep 2009 17:14:27 +0000

Glad you found the site–feel better soon! The pain will eventually subside, honest

By: rekha

rekha — Sun, 13 Sep 2009 07:50:39 +0000

Hi – I am so glad I found yr blog. I have been getting this pain for 2-3 years – and could’nt understand it. It began as a twinge when I turned over while sleeping, then progressively while using my shoulders etc. Now it is there always, level 2-5, with peaks of 9-10, when I cant even breathe!! I am on immunosuppresants for RA, and earlier this year had a whole battery of tests to rule out angio, TIA’s etc. my pain sometimes shoots up my arm, under my shoulder blade but never fully goes away. I tried etoricoxib 120, but it only dulled it. now i just try to limit my activities, and live with it.
Hopefully it will ease off and even go away.
And i found yr blog by accident…… Fate!!

By: Steph Kenrose

Steph Kenrose — Fri, 04 Sep 2009 12:16:59 +0000

I’m glad you found the site, and that your Tietze’s is getting easier to deal with! Stephanie

By: Steph Kenrose

Steph Kenrose — Fri, 04 Sep 2009 12:16:14 +0000

Jule, Please see my post on treatments–there are many natural options including acupuncture and biofeedback. Best of luck! Stephanie

By: Jule

Jule — Mon, 31 Aug 2009 14:52:04 +0000

I found this helpful as I have been experiencing discomfort and sometimes, acute stabbing-like attacks, for about a year now. I’ve been having trouble finding something that matched my symptoms but this sounds like what I’m experiencing. Have any of you had any luck with natural treatments- I’d prefer not to load myself with NSAIDs forever if there are other options.

By: Christine

Christine — Wed, 26 Aug 2009 15:36:38 +0000

Very interesting – as I have had this for many years – directly linked to my having Chronic Lyme Disease & Co-Infections – and a reactivated virus – HHV6…Glad you were able to clarify – as I present both as Costo and Tietze…years ago when it was at its worst – I did have a local anesthetic injection – which greatly helped me get through the worst (NO STEROIDS) – and then maintained with Toradol injections for about 8-9 months. Now can manage with ibuprofen.

By: peter jeffery

peter jeffery — Sat, 25 Jul 2009 07:55:23 +0000

hi all i have this i was diagonesd about 9 years ago i still have it i am on morphine for the pain and am due to have a spinal cord stimulator fitted very soon it only taken 9 year to get this far if you would like to chat about it contact me on shedog22@sky.com

By: All About Tietze’s Syndrome » Blog Archive » How to Tell if You Have Tietze’s Syndrome

Wed, 24 Jun 2009 14:28:13 +0000

[...] it could also be about one of dozens of other diseases (see my other articles here and here for other diseases that are often mistaken for [...]

By: All About Tietze’s Syndrome » Blog Archive » Tietze’s Syndrome is not Costochondritis

Tue, 23 Jun 2009 18:17:42 +0000

[...] Costal Condritus Or many other variations on the name. There are also other conditions that can mimic costochondritis or Tietze’s syndrome. For a run down on common conditions, see this article. [...]

By: admin

admin — Sat, 20 Jun 2009 16:48:17 +0000

Dianne,
This sounds similar to me. I used to get attacks every few months like yours (for sixteen years), before I changed my diet and it went away (I have a post or two in the works about my diet…coming soon if you are interested).
Stephanie