Comments on: Treatments for Tietze’s Syndrome http://www.tietzessyndrome.com/articles/treatments-for-tietzes-syndrome/ A Blog About How to Manage and Defeat the Disease Thu, 14 Jan 2010 00:37:27 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: Christine http://www.tietzessyndrome.com/articles/treatments-for-tietzes-syndrome/comment-page-1/#comment-747 Christine Sun, 10 Jan 2010 23:42:36 +0000 http://www.tietzessyndrome.com/?p=76#comment-747 Just wanted to say to be careful with steroid injections. I have both Costo and Tz - and I have them because I have Chronic Lyme disease...and these are both conditions that we are seeing on the rise with this disease... unfortunately, it all too often goes undiagnosed and/or misdiagnosed...and if one has Lyme who also has these get steroids - it will cause major issues - as steroids is like pouring miracle grow into our systems...so just please anyone considering steroids, and you have many other medical issues...it could make things much worse... i had a local injection - w/out steroids and it did help....I ended up having to inject myself with toradol for several months before i got it under control... I have found taking Turmeric (a spice) helps with this tremendously... Just wanted to say to be careful with steroid injections. I have both Costo and Tz – and I have them because I have Chronic Lyme disease…and these are both conditions that we are seeing on the rise with this disease…

unfortunately, it all too often goes undiagnosed and/or misdiagnosed…and if one has Lyme who also has these get steroids – it will cause major issues – as steroids is like pouring miracle grow into our systems…so just please anyone considering steroids, and you have many other medical issues…it could make things much worse…

i had a local injection – w/out steroids and it did help….I ended up having to inject myself with toradol for several months before i got it under control…

I have found taking Turmeric (a spice) helps with this tremendously…

]]> By: Sue http://www.tietzessyndrome.com/articles/treatments-for-tietzes-syndrome/comment-page-1/#comment-669 Sue Wed, 30 Dec 2009 12:24:47 +0000 http://www.tietzessyndrome.com/?p=76#comment-669 Hi everyone, having found this website by accident I feel I am not alone,it was a wonderful feeling to know that there are other people out there feeling the same,although I would not wish this on my worst enemy! I got sick in Sept this year with the flu and started coughing,now 3 mths on, I still cough,not as much,but the pain in my rib under my left breast is terrible.Any pressure on it feels like my chest is going to explode,this radiates around the underneath of my breast to under the armpit,press one bit and you could cry with pain!! I went to a doctor who gave me painkillers/anti inflammatory pills and said 2-3wks you will be ok!! My own doctor was much better when I saw her the following week and stated I have TS! Never heard of it I said,she printed out the sheet and gave me Tramadol, I was as high as a kite for over a week,not good when you own a horse and have work to do. Have been off work now since the 6th Dec and still taking pills although not high now,have had xrays and blood tests and awaiting results. I feel scared and alone,hence why I am writing this to reach out to people like me. By the way I had the steriod injection in my chest, DO NOT DO IT,PAINFUL YES AND NO IT DID NOT WORK!! But who knows it may work for others but I am doubtful,even my doctor was as she injected me!! Hi everyone, having found this website by accident I feel I am not alone,it was a wonderful feeling to know that there are other people out there feeling the same,although I would not wish this on my worst enemy! I got sick in Sept this year with the flu and started coughing,now 3 mths on, I still cough,not as much,but the pain in my rib under my left breast is terrible.Any pressure on it feels like my chest is going to explode,this radiates around the underneath of my breast to under the armpit,press one bit and you could cry with pain!! I went to a doctor who gave me painkillers/anti inflammatory pills and said 2-3wks you will be ok!! My own doctor was much better when I saw her the following week and stated I have TS! Never heard of it I said,she printed out the sheet and gave me Tramadol, I was as high as a kite for over a week,not good when you own a horse and have work to do. Have been off work now since the 6th Dec and still taking pills although not high now,have had xrays and blood tests and awaiting results. I feel scared and alone,hence why I am writing this to reach out to people like me. By the way I had the steriod injection in my chest, DO NOT DO IT,PAINFUL YES AND NO IT DID NOT WORK!! But who knows it may work for others but I am doubtful,even my doctor was as she injected me!!

]]> By: jean http://www.tietzessyndrome.com/articles/treatments-for-tietzes-syndrome/comment-page-1/#comment-560 jean Fri, 04 Dec 2009 18:54:50 +0000 http://www.tietzessyndrome.com/?p=76#comment-560 I was diagnosed with chondritis and told to take nurofen for a couple of weeks and it would go away. After researching I thought it may be tietze syndrome. Eight weeks later I still have the same symptoms. I don't have the pain that most people suffer with but I feel like the whole of my chest area is swollen. I also feel very fatigued after simple tasks. My breathing is not so good and am often very wheezy. I haven't been able to go about my normal life. I feel like my life is on hold at the moment. I was diagnosed with chondritis and told to take nurofen for a couple of weeks and it would go away. After researching I thought it may be tietze syndrome. Eight weeks later I still have the same symptoms. I don’t have the pain that most people suffer with but I feel like the whole of my chest area is swollen. I also feel very fatigued after simple tasks. My breathing is not so good and am often very wheezy. I haven’t been able to go about my normal life. I feel like my life is on hold at the moment.

]]> By: Steph Kenrose http://www.tietzessyndrome.com/articles/treatments-for-tietzes-syndrome/comment-page-1/#comment-552 Steph Kenrose Thu, 03 Dec 2009 11:48:44 +0000 http://www.tietzessyndrome.com/?p=76#comment-552 Diane, I did work at a desk for a few years, and the pain didn't worsen for me. I was lucky though, because I was the ergonomics person for my department. If your chair/desk set up is causing you discomfort, you should have it checked for ergonomic set up. Good luck! Stephanie Diane,

I did work at a desk for a few years, and the pain didn’t worsen for me. I was lucky though, because I was the ergonomics person for my department. If your chair/desk set up is causing you discomfort, you should have it checked for ergonomic set up.

Good luck!
Stephanie

]]> By: Daire Thornton http://www.tietzessyndrome.com/articles/treatments-for-tietzes-syndrome/comment-page-1/#comment-549 Daire Thornton Wed, 02 Dec 2009 19:15:38 +0000 http://www.tietzessyndrome.com/?p=76#comment-549 I have also recently been diagnosed with TS. I often find it very difficult to drive as the pain I experience is mostly in my right ribs and my left shoulder. Also I have an office job and I find that sitting at my desk becomes more and more difficult through out the day. Does anyone else work at a desk and find it difficult too. Any suggestions? I have also recently been diagnosed with TS. I often find it very difficult to drive as the pain I experience is mostly in my right ribs and my left shoulder. Also I have an office job and I find that sitting at my desk becomes more and more difficult through out the day. Does anyone else work at a desk and find it difficult too. Any suggestions?

]]> By: Amy Jo. http://www.tietzessyndrome.com/articles/treatments-for-tietzes-syndrome/comment-page-1/#comment-542 Amy Jo. Tue, 01 Dec 2009 15:55:22 +0000 http://www.tietzessyndrome.com/?p=76#comment-542 This has been so informative!!! I was diagnosed with Costochondritus by a Rheumatoid Doctor a few months ago. That was after months of tests given to me by my PCP. I kept telling her the pain is ALWAYS in my sternum and it pops all the time. Then the attck happened...the pain got so bad I thought for sure I was having a heart attack. My husband brought me to the ER and they said my heart was fine except that I had Pericarditus and Pluerusy. So the gave me meds for that. the pain came and went for a good three months before subsiding to just the pain in my sternum. a few months later I got the familiar pain radiating across my chest up my neck and down my arm. My PCP then gave me meds for nerve damage...they made me sick and din nothing for the pain. Finnaly after another bout with the pain a few months later I went to the Rheumatoid Doctor to rule out arthritis. So I got the dianosis of Costochondritus. But after reading this I belive I have Tietze Syndrome and I will be mentioning it to my doctor today as I have yet ANOTHER flair-up as we speak!! I have missed so much work do to this...and my quality of life while I am in pain is just awful...God I hope they can find something to help me!!! Thank you for all this info! This has been so informative!!! I was diagnosed with Costochondritus by a Rheumatoid Doctor a few months ago. That was after months of tests given to me by my PCP. I kept telling her the pain is ALWAYS in my sternum and it pops all the time. Then the attck happened…the pain got so bad I thought for sure I was having a heart attack. My husband brought me to the ER and they said my heart was fine except that I had Pericarditus and Pluerusy. So the gave me meds for that. the pain came and went for a good three months before subsiding to just the pain in my sternum. a few months later I got the familiar pain radiating across my chest up my neck and down my arm. My PCP then gave me meds for nerve damage…they made me sick and din nothing for the pain. Finnaly after another bout with the pain a few months later I went to the Rheumatoid Doctor to rule out arthritis. So I got the dianosis of Costochondritus. But after reading this I belive I have Tietze Syndrome and I will be mentioning it to my doctor today as I have yet ANOTHER flair-up as we speak!! I have missed so much work do to this…and my quality of life while I am in pain is just awful…God I hope they can find something to help me!!! Thank you for all this info!

]]> By: Wendy http://www.tietzessyndrome.com/articles/treatments-for-tietzes-syndrome/comment-page-1/#comment-538 Wendy Tue, 01 Dec 2009 10:36:12 +0000 http://www.tietzessyndrome.com/?p=76#comment-538 I have just been 2 hosp. Was worried about pains in L breast as my mother died of Breast Cancer. V painful incl. sharp pains in breast, in shoulder and down left arm. Debilitating pain at times. Have been diagnosed with Tietze's sydrome but am confused as the leaflet produced by 'Breast Cancer Care (UK) says the sydrome IS 'costochondritis or Tietze's Syndrome'. Your site says these are different diseases!. I have been told by the nurse practitioner to take Ibuprofen 3 times a day for a month but that it can take 2 years to improve. Thankyou for your site which has made me feel less alone in the pain I am suffering. I have just been 2 hosp. Was worried about pains in L breast as my mother died of Breast Cancer. V painful incl. sharp pains in breast, in shoulder and down left arm. Debilitating pain at times. Have been diagnosed with Tietze’s sydrome but am confused as the leaflet produced by ‘Breast Cancer Care (UK) says the sydrome IS ‘costochondritis or Tietze’s Syndrome’. Your site says these are different diseases!. I have been told by the nurse practitioner to take Ibuprofen 3 times a day for a month but that it can take 2 years to improve. Thankyou for your site which has made me feel less alone in the pain I am suffering.

]]> By: Steph Kenrose http://www.tietzessyndrome.com/articles/treatments-for-tietzes-syndrome/comment-page-1/#comment-526 Steph Kenrose Sat, 28 Nov 2009 10:25:35 +0000 http://www.tietzessyndrome.com/?p=76#comment-526 Hi, It sounds like you have a classic case of Tietze's. At least, you could have been describing my symptoms from the early 1990s. Here is a post about the difference between<a href="http://www.tietzessyndrome.com/articles/tietzes-syndrome-is-not-costochondritis/" rel="nofollow"> costochondritis and Tietze's syndrome.</a>. Welcome to the site! Stephanie Hi,
It sounds like you have a classic case of Tietze’s. At least, you could have been describing my symptoms from the early 1990s.
Here is a post about the difference between costochondritis and Tietze’s syndrome..
Welcome to the site!
Stephanie

]]> By: Bex http://www.tietzessyndrome.com/articles/treatments-for-tietzes-syndrome/comment-page-1/#comment-512 Bex Thu, 26 Nov 2009 00:57:36 +0000 http://www.tietzessyndrome.com/?p=76#comment-512 Hi, I'm 31 and I was in Hospital twice last year friends thinking Iwas possibly having a heart attack (my family has heart disease on both sides) i was eventually sent to a specialist who said I had T.S. I am looking for somewhere that will outline all the symptoms possible...my common symptoms are sharp pains when I breath in on the left or right side of my chest, my chest hurts to touch and I have a constant burning feeling straight across my chest which almost feels like heartburn but goes on for weeks and weeks....is this normal T.S symptoms or do I have costochondritis? From what I have researched there is a difference between the two. Any help or information will be greatly appreciated. :) Hi, I’m 31 and I was in Hospital twice last year friends thinking Iwas possibly having a heart attack (my family has heart disease on both sides) i was eventually sent to a specialist who said I had T.S. I am looking for somewhere that will outline all the symptoms possible…my common symptoms are sharp pains when I breath in on the left or right side of my chest, my chest hurts to touch and I have a constant burning feeling straight across my chest which almost feels like heartburn but goes on for weeks and weeks….is this normal T.S symptoms or do I have costochondritis? From what I have researched there is a difference between the two. Any help or information will be greatly appreciated. :)

]]> By: Heather http://www.tietzessyndrome.com/articles/treatments-for-tietzes-syndrome/comment-page-1/#comment-486 Heather Sat, 21 Nov 2009 02:20:23 +0000 http://www.tietzessyndrome.com/?p=76#comment-486 I started having chest pain when I was nine years old leading to my diagnosis at the age of 12 for Tietze's Syndrome. I am now 22 years old and have exhausted almost every juncture known to man. I am going in for yet another doctor opinion tomorrow whom will hopefully opt for surgery. I would like to thank all of those who have participated in this blog letting others know they are not alone with this syndrome. I have had all of the above stated symptoms ranging from the mild to severe pain, the mimicking of a heart attack, and the chest "clicking." I am looking forward to finding a light at the end of the tunnel! I wish you all the best of luck in your healing from this literal pain! I started having chest pain when I was nine years old leading to my diagnosis at the age of 12 for Tietze’s Syndrome. I am now 22 years old and have exhausted almost every juncture known to man. I am going in for yet another doctor opinion tomorrow whom will hopefully opt for surgery. I would like to thank all of those who have participated in this blog letting others know they are not alone with this syndrome. I have had all of the above stated symptoms ranging from the mild to severe pain, the mimicking of a heart attack, and the chest “clicking.” I am looking forward to finding a light at the end of the tunnel! I wish you all the best of luck in your healing from this literal pain!

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